Back in November of 2013 I wrote a blog post about how great I think my endocrinologist is (My Endo is Super) and I continue to feel that way.
Lately I’ve seen a lot of people complaining that, while they want to do better with their own diabetes care…they aren’t getting the support they want or need from their endos.
I’ve seen stories of people whose endos will not write them RXs for a CGM because ‘they are only for people who can’t feel their lows….it’s an abuse of health insurance funds for anyone else to use one’.
I’ve seen stories of people who have lowered their A1c levels and instead of getting the pat on the back they expected, they were told ‘this is dangerous…you cannot maintain this without a lot of lows’ (despite the fact that many of these people are NOT experiencing a lot of lows, and are still maintaining A1c levels well above ‘normal’).
I’ve seen stories of people being told that their A1c levels in the mid-7s are ‘perfect’ and they don’t need to aim for anything lower.
Personally….I think all of those endocrinologists are a little bit crazy. Either way, I’m thankful they are not my doctors, because if they were….I’d have to completely disregard them, their comments, and their ‘recommendations’.
I remain thankful that I have an endocrinologist who sees the value in a CGM for ANYONE with diabetes who is self-motivated to care for themselves the best they can. I remain thankful that I have an endocrinologist who can celebrate A1c levels below 6 (complete with happy dances, high fives, and sticking his head into the hallway to brag to the CDE across the hall about what he and I have accomplished) instead of chastising me. I remain thankful that I have an endocrinologist who realizes that we can handle low blood sugars in a way that doesn’t require him to tell me that my A1c must remain over 7. I remain thankful that I have an endocrinologist who knows I can and trusts that I will change my rates and ratios as needed to react to patterns and changes in my reactions to insulin. I remain thankful that, if I do have a question, I have an endocrinologist who will email me back within 24 hours – he has even emailed me at 1 or 2am in the past. I remain thankful that I have an endocrinologist who saw something questionable in my eyes and recommended I see a retina specialist (who diagnosed me with retinopathy) or heard something strange in my heart beat and recommended I see a cardiologist (who diagnosed me with a form of tachycardia and put me on medication to control it)…a doctor who didn’t waste time getting colleagues with more knowledge of certain health conditions involved in my care. I remain thankful that I have an endocrinologist who has never questioned my desires when I’ve wanted to switch insulin pump brands (even when Tandem was brand new and he’d never heard of them before….he told me he’d do some research on it, and within a day he was emailing me back to say it looked awesome and he’d be pleased to help me get a t:slim, if that’s what I wanted) or glucose meters, so have needed all new RXs. I remain thankful that I have an endocrinologist who is involved in diabetes advocacy (he was the American Diabetes Association’s Wisconsin Chapter President in 2013) OUTSIDE of his work-day.
More and more lately, while hearing from others in the DOC, I realize just how lucky I am to have found the endocrinologist I have….and I am more and more convinced I do not ever want to be in a position where I can’t see him anymore or have to switch to another endo for insurance reasons, etc.
Do you like your own endocrinologist? Do you feel he/she could do a lot better at supporting you? I’m interested in hearing from all of you….